National Support Groups & Information
Alzheimer's Research UK
Alzheimer’s Research UK is the UK's leading dementia research charity, dedicated to causes, diagnosis, prevention, treatment and cure. Backed by their passionate scientists and supporters, They are challenging the way people think about dementia, uniting the big thinkers in the field and funding the innovative science that will deliver a cure.
Website: www.alzheimersresearchuk.org
Tel: 0300 111 5555
Dementia Adventure
Vision: A more active and fulfilled life for everyone living with dementia. A registered community interest company offering dementia holidays, traning, research, dementia friendly venues, consultancy and more. Supporting people with dementia to get outdoors and experience the benefits of nature.
Website: www.dementiaadventure.co.uk
Tel: 01245 237 548
Dementia UK
Dementia UK – the specialist dementia nurse charity.
Their nurses, known as Admiral Nurses, who they continually support and develop, provide life-changing care for families affected by all forms of dementia – including Alzheimer’s disease.
Nurses are here when people need help. They have the time to listen and the knowledge to solve problems. As dementia specialists, Admiral Nurses help families manage complex needs – considering the person living with dementia and the people around them – and they can advise other healthcare professionals.
For families affected by dementia, they can be a lifeline.
When people are struggling, their nurses help them take back control. They help people living with dementia to stay independent for longer, and support the people caring for them so they have the strength to cope with the bad days, and the energy to enjoy the good days.
We believe Admiral Nurses give people the quality of care that we would all want for ourselves and our loved ones – and they are working hard to increase the number of nurses across the UK so no one has to face dementia alone.
Website: www.dementiauk.org
Tel: 0800 888 6678
DSDC The Dementia Centre
Based at the University of Stirling, DSDC uses research to inform practice, and practice to inform research providing comprehensive resources for anyone supporting someone living with dementia, both personally and professionally.
Website: www.dementia.stir.ac.uk
Tel: 01786 467745 or 01786 467350
Join Dementia Research
Join Dementia Research is run by the National Institute for Health and Care Research (NIHR) in partnership with Alzheimer Scotland, Alzheimer's Research UK and Alzheimer's Society. The service enables people to register their interest in participating in dementia research and be matched to suitable studies.
Through Join Dementia Research, people can see what dementia research is taking place, both in their local area and across the UK.
The service connects researchers with people who want to participate in studies. You will receive a notification and can choose whether or not to proceed. There is no obligation to take part in any of the studies you are matched to.
Website: www.joindementiaresearch.nihr.ac.uk
Tel: 0300 111 5111
Parkinson's UK
By funding the right research into the most promising treatments, we get closer to a cure every day. Until then, Parkinson's UK are here for everyone affected by Parkinson’s, including their family and carer.
Parkinson's Helpline: 0808 800 0303
- Monday to Friday: 9am to 6pm
- Saturday: 10am to 2pm
- Our helpline is closed on Sundays and bank holidays.
Website: www.parkinsons.org.uk
Revitalise
Revitalise is a national charity and the leading UK provider of breaks and holidays for disabled people and carers across two purpose-built centres. They create lasting experiences that stay with guests long after they return home and campaign for equal access to breaks and holidays.
Website: www.revitalise.org.uk
Tel: 0303 303 0145
The Silver Line
The Silver Line is a free, 24-hour telephone service for older people.
They offer friendship, conversation, and support to those who need it. Whatever the day or time, you can pick up the phone and speak to one of friendly Silver Line team members.
Whether you’d like to exchange a quick “good morning” with someone, fancy a chat about how your day has gone, or need a trusted listening ear to share your thoughts and feelings with, they are here to talk.
Website: www.thesilverline.org.uk/
Tel: 0800 470 8090
The Stroke Association
Supporting people to rebuild their lives after stroke. The Stroke Association believes everyone deserves to live the best life they can after stroke.
Groups offer support to stroke survivors, carers, family and friends. Built on friendships and fun, they are a safe and supportive space to try things again, to learn more about stroke and self-care and to build your confidence as you rebuild your life after stroke.
Stroke Support Helpline: 0303 3033 100
Website: Find local stroke support groups
Young Dementia UK
A charity that helps people whose lives are affected by young onset dementia.
Tel: 01993 776 295
Web: www.youngdementiauk.org
Ask SARA/Living made easy
Guided advice about daily living and equipment.
Tel: 0300 999 0004
Web: www.asksara.org.uk
Web: www.livingmadeeasy.org.uk
Dying Matters
A coalition which aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life.
Web: www.dyingmatters.org
Money Advice Service
Free, Impartial money advice, including benefits.
Tel: 0800 138 7777
Web: www.moneyadviceservice.org.uk